West Chester, Ohio – This year, Emily Cohen and her sister Este Wolf of Mason, Ohio will join thousands nationwide to come together and walk in support of those affected by polycystic kidney disease (PKD). PKD is one of the most common life-threatening genetic kidney diseases. It affects thousands in America and millions worldwide, who are in urgent need of treatments and a cure.
The 2019 Cincinnati-Dayton Walk for PKD is planned for September 22 at Voice of America Park in West Chester with PKD patients, their families, friends and members of the PKD medical community fundraising and walking together to end PKD. Registration and the PKD festival begin at 11 a.m., with the walk starting at 1 p.m. Festival activities include children’s games and activities, face painting, raffles and free blood pressure checks and healthy snacks. Kids can also donate their spare change and race for PKD in the Kids’ Penny Dash at 12:30. More than twenty baskets with a minimum value of $120 will be raffled off, including two premium baskets worth more than $1,000.
Emily Cohen, the chair of the 2019 PKD walk, knows first-hand the impact PKD can have on families. Her family has had a long history of PKD, and Emily lost her mother and her oldest sister to it when she was a child. In 2017, Emily was able to save her other sister Este’s life by donating a kidney to her.
“PKD can be a devastating disease for so many families,” said Emily. “The PKD walk is so important, as it helps raise awareness and move a few steps closer to finding a cure. One hundred percent of the funds raised from the Walk go to PKD research to help find treatments and a cure, so this event can make a huge difference for patients and families with PKD.”
This year’s walk marks a special anniversary for Emily and Este, as it is also on their mother’s birthday. “This will be a special way for us to remember her,” said Emily.
The annual Walk for PKD is the signature fundraising and public awareness event for the PKD Foundation and is the largest gathering of PKD patients, family, friends and supporters; more than 11,000 strong. The Walk for PKD is hosted in more than 50 cities nationwide. Since 2000, the Walk for PKD has raised nearly $32 million, and the Cincinnati-Dayton walk was one of the top 10 walk events in the country in 2018.
Register for the Cincinnati-Dayton Walk for PKD at www.walkforpkd.org/Cincinnatidayton.
PKD patients are in urgent need of treatments and a cure. PKD causes uncontrolled growth of fluid-filled cysts in the kidneys, often leading to kidney failure. Once a person has kidney failure, dialysis or a transplant are the only options to treat the damage the disease has caused.
There are two types of PKD: autosomal dominant PKD (ADPKD) and autosomal recessive PKD (ARPKD). ADPKD is more common and affects an estimated 600,000 Americans and 12.4 million people worldwide. Parents with ADPKD have a 50 percent chance of passing it on to each of their children. Approximately 10 percent of the people diagnosed with ADPKD have no family history of the disease, with PKD developing as a spontaneous (new) mutation. Once they have it, they have a 50 percent chance of passing it on to each of their children. The less common form, ARPKD affects approximately 1 in 20,000 children, and often causes death in the first month of life. Only 70% of children born with ARPKD survive the newborn period and one-third of those who survive will need dialysis or transplantation by age 10.
About the PKD Foundation
The PKD Foundation is the only organization in the United States solely dedicated to finding treatments and a cure for PKD.
Our mission: We give hope. We fund research, advocate for patients and build a community for all affected by polycystic kidney disease (PKD).
Our Vision: #endPKD